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14 Hours for Noah

By The Hughes Journey

In Loving Memory of Noah – A Fundraiser for Hummingbird House
This event is held in honour of our beautiful son, Noah, who was born with a rare and life-limiting genetic condition called Zellweger Syndrome. We were blessed with 14 unforgettable months with him before he passed away in January this year.
Noah’s diagnosis came after his birth, and with it came a world of unknowns — a world that felt incredibly isolating. Families like ours, facing rare genetic conditions, often struggle to find answers, support, and understanding. That’s why, as well as raising funds, we’re also passionate about raising awareness — so that no family feels alone in their journey.
In the midst of our uncertainty, we found a place of light, compassion, and hope: Hummingbird House.
Hummingbird House is Queensland’s only children’s hospice, providing respite and end-of-life care for children and their families. They walked alongside us through every step of Noah’s journey — not only during his life, but in his passing and the tender moments after. Their care helped us create memories, find peace, and feel less alone in a time when we needed it most.
Now, in Noah’s memory, we are raising funds to give back to the place that gave us so much. Every dollar raised will go directly to Hummingbird House to support other families facing unimaginable challenges with love, dignity, and care.
Please join us in celebrating Noah’s life and legacy — helping other families feel the warmth of support, and shining a light on the rare conditions that deserve to be seen, heard, and understood.


Thank you 

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$4,248

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Thank you to my Sponsors

$1.02k

Ricky, Tanika And Lylah

No words could ever ease your pain, but please know you’re surrounded by love. Your beautiful boy’s spirit will always be near — watching over you, proud of his incredible parents and all you do to keep his memory shining bright.

$520

The Yard Gym Northlakes

Here’s to such a beautiful life and Family ; we thank all that the hummingbird house do to support these beautiful families

$500

Jodie Church

For The Hughes family, in memory of baby Noah 🤍 Wishing you peace, strength, and love as you honour your beautiful boy’s memory.

$211

Te Logan

For Noah and all the beautiful angels

$211

Teeuwsen Family

❤️

$211

Eden V

💕

$116.40

Rell & Mike Crawford🫶

$116.40

Jessica Bliesner

$106.12

Lo & Co

Cheering Noah, cheering his little bro! 🙌 so much love!!

$106.12

Brooke Hill

Such a beautiful way to honour Noah’s life and legacy. You are both incredibly strong and amazing ❤️ - Brooke and Jacob

$103.72

Maddie M

For Noah❤️. For Jay and Cal❤️ For research and support to the Hummingbird house❤️

$54.12

Mike Mayrseidl

Love and respect to the fam

$54.12

James Lynch

For Noah! ❤️

$54.12

Anonymous

$54.12

Lani & Jaxson Kirkland

🤍🤍

$54.12

Tahlia Casey

Praying for you guys 🩷

$54.12

Lulu Behrnes

🤍✨

$54.12

Jordan Dornan

For your beautiful boy and his spirit to continue on, sending you both love and strength 💛💛

$54.12

Anonymous

$54.12

Catalina Oswald

From one impactful little human to another. Sending so much love xoxo

$54.12

Aaron Day

$51.74

P W

$50

Jess

For Noah 💛

$43.60

Mags

❤️

$33.15

Ekin Smith

My heart is with you and your family.

$33.15

Phoebe Richards

Superhero’s both of you and Noah!! Beautiful way to honour your little angel boy. Wishing you all the very best in this journey! Such a beautiful tribute and amazing way to give back. You are both doing amazing 🫶🏻🫶🏻

$33.15

Matt Teljega

$33.15

Emily Bowers

$33.15

Clay

$32.43

Summer M

🫶🏻

$30

Dylan Collins

$22.58

Anonymous

❤️❤️

$22.58

Tay 🫶🏼

For Noah 💛

$22.58

Anonymous

$20

Ellie Potter

$11.65

Kevin Harding

$11.65

Pat Mackay